STAKEHOLDER ENGAGEMENT NAVIGATOR

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Community Engaged Research

Community engaged research (CEnR) is a collaborative process between the researcher and community partner that creates and disseminates knowledge and creative expression with the goal of contributing to the discipline and strengthening the well-being of the community. CEnR identifies the assets of all stakeholders and incorporates them in the design and conduct of the different phases of the research process.

far fa-dollar-sign fa-sm Budget (e.g. personnel, space, equipment) Low Medium High far fa-user-clock Time per interaction I expect to engage stakeholders for... An hour or less Half a day A full day far fa-calendar-check Number of interactions I expect to interact with stakeholders... 1-2 times Appx. 5 times 10+ times Engagement Purposes far fa-scrubber Identify and explore new perspectives or understanding far fa-scrubber Develop research questions relevant to stakeholders far fa-scrubber Select outcomes and measures that matter to stakeholders far fa-scrubber Refine and help implement effective recruitment strategies far fa-scrubber Expand and diversify stakeholder outreach far fa-scrubber Investigate best ways to successfully implement a study, based on stakeholder insights far fa-scrubber Describe findings in ways stakeholders can understand and use far fa-scrubber Disseminate findings to relevant audiences far fa-scrubber Design strategies for translating research into practice far fa-clockTime Frame

Generally several months and can span up to several years; Depends upon the nature of the study

 fal fa-tasks-altWorkload LIGHT MEDIUM HEAVY Appropriate Applications More useful for: far fa-scrubber Receiving community participation in some or all aspects of the research process far fa-scrubber Developing respect and trust in the community far fa-scrubber Creating alliances and partnerships far fa-scrubber Developing respect and trust far fa-scrubber Long term/sustainable engagement far fa-scrubber Engaging stakeholders with diverse skill sets Less useful for: far fa-scrubber Quick and easy engagement far fa-scrubber Projects with a limited time frame far fa-scrubber Projects with limited funds far fa-scrubber Engaging stakeholders with different agendas far fa-scrubber Gaining information to be used at the individual level Key Characteristics Resources Needed fas fa-money-bill-waveMoney far fa-scrubber Participant Compensation far fa-scrubber Transportation far fa-scrubber Food and drink far fa-scrubber Childcare far fa-scrubber Other costs vary based on specific project requirements fas fa-paperclipMaterials and Resources far fa-scrubber Technology for communicating with stakeholders (ex: online platform, email chain, etc) far fa-scrubber Comfortable and convenient space to hold meetings far fa-scrubber Training content far fa-scrubber Materials that use language that is accessible to the stakeholder group far fa-scrubber Other materials and resources vary based on specific project requirements fas fa-usersPersonnel far fa-scrubber Community research team far fa-scrubber Administrative staff far fa-scrubber Staff able to provide training to stakeholders on various research activities far fa-scrubber Trained facilitators far fa-scrubber Experts in relevant areas far fa-scrubber Qualitative methodological and analysis expertise far fa-scrubber Other personnel needs will vary based on specific project requriements How To

Below are some general guidelines to using this approach. Specific details will be determined by the nature of the project.

Problem identification: community members may approach researchers with a specific problem on which they want help or researchers may approach a community and propose working with them to research a specific disease or issue. Research plan development, community selection, and securing funds: Researchers work with community organizations to draft the proposal, develop the research design, and secure the funds. Community organizations may contribute to the proposal draft, suggest research questions, and offer ideas on recruitment. They can give advice on logistics, suggest other organizations to collaborate with, and advise on other aspects of the project. Build trust: Share drafts of the research proposal (or the funded grant) with community partners; Include funding for the work of community partners; Share information on the project budget. If possible, community organizations should contribute to budget development. Begin study in community: Involve community members as project staff in the office, in the field, or as advisors whenever possible. Their presence can help with recruitment and retention of study participants, and secure community support, which will help the research endeavor. Sometimes it is not possible to involve community members directly with the study. In this case researchers may develop other ways to promote community involvement. Develop & implement intervention or data collection process. Community organizations can help tailor the intervention, advise when problems arise, promote the study and collect community responses. Data collection: Community involvement will depend on the type of data needed. Community members can be hired to administer questionnaires, log participation, read measurement devices or make observations. Data analysis: If the community office staff are familiar with the data, they can assist in data cleaning, a process of checking that data is correctly identified, complete and ready for analysis. Report and disseminate results: Dissemination of results to the community may take different forms. Community organizations and leaders are often more interested in how many people participated and benefited than in the academic study results. Community groups are also more likely to want a radio program, newspaper article, public meeting or other event to present the information they think will interest community members. Depending on the sensitivity of the topic, the community advisory board may want the data presented publicly in a manner that will help community members understand the results. Tips Ensure that materials are culturally and linguistically appropriate for the community you are engaging. Involve community leaders and groups in the design and conduct of the research. Provide trainings to community members. Develop plans and strategies to disseminate the results and elicit feedback from community stakeholders. Consider involving community leader/groups in recruitment Considerations How will community consent be obtained? What conflicts of interest may affect community participation? Keep in mind there may be special IRB considerations Examples https://www.sciencedirect.com/science/article/pii/S0277953611003522?via%3Dihub https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2831782/ References / Other Resources https://www.citiprogram.org/citidocuments/Duke%20Med/Practicing/comm-engaged-research-4.pdf https://community.vcu.edu/faculty-support-/cenr-support-at-vcu/what-is-community-engaged-research/ https://catalyst.harvard.edu/pdf/regulatory/CEnR_Webpage_101_Presentation.pdf

The Stakeholder Engagement Navigator is a service of the Data Science to Patient Value Initiative at the
University of Colorado Anschutz Medical Campus

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